From our CEO – MS Australia

Pictured: CEO Rohan Greenland signing the book of condolence for Her Majesty, The Queen, Elizabeth II at Government House.

MS Australia recognizes Her .’s remarkable reign Your Majesty, Queen Elizabeth II and her outstanding contribution to more than 600 charities over 70 years, many of them related to health, disability and research.

We join our Patron, the Governor General of Australia, in extending our sincere condolences to the Royal Family.

I was recently honored to be named President of the Neurological Alliance Australia. So, what does this mean for the MS community? The Alliance brings together a growing number of non-governmental organizations to advocate for a range of common policy objectives.

Among which:

  • Better and fairer access to services, including the NDIS and aged care, with the immediate aim of having a neurological voice embedded in the NDIS advisory structure
  • Fair funding for neurological research, especially from the Medical Research Future Fund (MRFF)
  • Better data, with an immediate need for a neurological data set to be collected regularly through the Australian Institute of Health and Welfare

Collective advocacy gives us a stronger voice, with 13 organizations singing from the same songbook.

I am pleased that the priorities outlined in a recent workshop strongly reflect MS Australia’s priorities as set out in the 2022-26 Strategic Plan.

These priorities have been identified in close collaboration with the MS community and articulated in our largest research and advocacy priority survey conducted last year.

We are already pushing for a better NDIS for MS, more funding from the MRFF for MS priorities and better data collection so that gaps in service and research are brought to the attention of all governments.

Another common agenda is access to healthcare professionals when and where they are needed.

We will redouble our commitment to the 25,600 people with MS and their carers, family and friends. But we will increase that voice tenfold if we also talk to other NGOs representing about two million Australians living with neurological disorders.

Together we are stronger.

Read more about the Neurological Alliance Australia.

Leave a Comment